Patients and Public
Public Involvement and Engagement
Health Innovation Manchester ensure that patient and public voices are at the heart of research and innovation across the entire translational pathway.
Our Public Experience Group (PEG) continues to be invaluable resource that enables us to deliver programmes and projects which are grounded in the lived experience. Our PEG members have continue to be involved in a wide range of work underpinned by the following organisation objectives:
All HInM Programme Leads and Projects Managers review their portfolios to make clear the public involvement and engagement aspects and have been feeding this back in through the PEG group to access the required support for co-producing approaches to Health and Implementation.
PEG members also work closely with Health Innovation Manchester colleagues to highlighting the important of the PP&E agenda and support the organisation to work towards a true co-production model – which is Health Innovation Manchester’s ambition.
In 2018/2019 we have
- Local Health and Care Record Exemplar: PEG involvement around utilising NHS data has helped Inform the work of the Local Health and Care Record Exemplar (LHCRE); providing a patient perspective which has shaped wider national conversations and dialogue in GM. This focused particularly on potential uses of primary and secondary data.
- Access to Data: Provided a public perspective on improved access to data. This also informed the understanding of patients’ ambitions around how improved access points to our own health care data can promote better health and care outcomes for patients, and informed conversations in GM that were looking at the possible uses of data.
- Detecting and diagnosing dementia: Provided a public perspective on dementia awareness and the possible impacts of the early detection around mild cognitive impairment. This included particular insight into the needs of the South Asian community.
- Health Innovation Manchester Strategy: Contributed to informing, shaping and feeding back on the Health Innovation Manchester business strategy.
- Applied Research Collaborations Bid (ARC): Reviewed proposed work programmes and provided insight on how to reach out to and work with diverse local communities including ideas on new approaches and methods to demonstrate the impact of public involvement. This was reflected in the bid.
- Dementia united consortium: Opportunity to feedback on the Lived Experience Barometer (a way to measure quality of life for people living with dementia) and Health Innovation Manchester’s planned approach to the programme.
- Project assessment mechanism: Reviewed and provided feedback on Health Innovation Manchester’s project assessment form (PAF) which is used with innovators to inform resource investment decisions around specific innovation and innovation programmes.
- Datalab: Through their Participation in a discussion group, PEG members provided a public and patient perspective around generating insights from data. This included exploring ethical issues such as the public perspective on mass prescribing of statins and ways in which the NHS could improve communication with patients.
- The Decide Project: Participated in a discussion group informing the direction of “The Decide Project” and an application to Health Innovation Manchester for project management support. They also highlighted where the model could be applied in other areas of health and care.
- Momentum Fund: PEG reviewed applications and actively contributed to shortlisting and deciding recipients of Momentum innovation funding. They provided a public and patient perspective to the process and innovations that were submitted.
In 2017 / 2018 we have:
- PEG members were involvement in the HInM Innovation and Prioritisation Committee (IPMC) workshop, to develop the health and care ‘systems’ approach to prioritisation of system level innovations. A public member has now nominated and in position as part of the IPMC Membership.
- PEG members played a key part in Fuelling Ambition Creatively Together (FACT), this initiative was designed for young people to showcase their ideas for digital innovations in the world of health. PEG members sat as part of an expert panel, providing feedback and support for further development and refinement of ideas.
- PEG members attended the HInM Patient Safety, Maternity and Neonatal Learning System launch event to kick start public involvement and engagement agenda across PSC workstreams. The PSC team have now produced a plan for patients and public involvement and engagement across their work-streams.
- PEG members have been working with the Programme Manager of the European Regional Development Fund at HInM on Health 2.0. Health 2.0 is a meetup group focused on innovations in the delivery of healthcare and health related technology. This community aims to share, discuss, showcase and develop ideas to improve patient care.
- The development of an Early Detection and Diagnostic Dementia Framework for Greater Manchester has seen a PEG representative facilitating and leading discussions of the Public and Involvement workstream.
- PEG make up an important part of Health Innovation Manchester’s Innovation Panel, offering feedback on innovation grants/ applications.
- PEG Public Co-Chair (Alan Campbell) has continued to attend and feedback from the National AHSN Involvement Leads meeting and working to influence the national agenda around involvement and engagement.